Beautiful 20 month old Talia weighs just 5 kilos and doctors are at a loss to understand what is actually wrong with her. Today her mother, Shani, tells us about her struggles over the past 20 months in trying to get doctors in Spain to understand what is affecting Talia's growth. Until today it still remains a mystery.
Follow Talia's progress on Shani's blog.
The area that doctors are looking into are Mitochondrial Diseases. Talia is taking Carnicor and Co-enzyme Q10.
Good reference websites include www.mitoaction.org and www.umdf.org